Next Level Extreme Fitness

How I am learning to "Do Better. Be Better." after the cavernoma malformation in the pons of my brainstem bled.

Thursday, March 3, 2016

Let's Do This!

Growing up I always had a plan.  I would go to college, get a job, get married, have kids.....my whole life planned out and completely on track.  Then I had a stroke.  Needless to say, the plan changed a bit and had to be rewritten.  And did I ever rewrite it.  Everything was falling in to place.
 
Then I had another stroke.  And the train went off the tracks again.  This time I would even say that it fell down the cliff a little bit. The last three weeks have been a struggle and now I find myself on the eve of brain surgery.
 
I am having brain surgery tomorrow.
 
Earlier this afternoon I was trying to figure out what I was going to write tonight and the only thing coming out was, "I'm having brain surgery tomorrow." I mean, what else more is there to say than that? Since then we met with Dr. Spetzler and discussed the procedure in detail and every possible outcome that could happen. So what are those outcomes? I couldn't tell you. Until I wake up tomorrow night I will have no idea if my entire CM has been removed or what kind of recovery I am looking at.
 
"The only thing predictable about life is its unpredictability."
-Remy, Ratatouille
 
Ain't that the truth?

 
Here's what I do know: Dr. Spetzler walked into the office to talk with us today, shook my hand, and said, "Well you look a lot better than your scans do." To which I responded, "A lot of people tell me that."
 
A whole bunch of really scary stuff was explained to Patrick and I today during that meeting. But, that one sentence is the only thing that matters to me. That sentence showed me that I am already beating the odds. I am a surprise to the top neurosurgeon in the United States.  That is the motivation that I will carry with me in these upcoming weeks.
 
So, I spent the rest of the afternoon and evening enjoying my family.  I arrived back to our condo to the warm welcome of my brother, who flew down here to surprise me.  I had a great phone call with my sister, a wonderful supper, and I got to speak with Patrick's brother and sisters.
 
We also got to Face Time with the girls.  They were so excited to see us.  Myah just kept screaming Mommy and Daddy and waving at the screen. We talked to all of them for a bit, ending with Myah holding the iPad.  We said goodbye and she started to cry.  She continued to say no over and over again.  It KILLED me.  I had a split second where I asked myself if I was making the right decision. 
 
But, I know I am making the right decision.  My family and friends tell me I am making the right decision.  The top neurosurgeon is telling me I am making the right decision.  I am going to have this surgery, it is going to go well, I am going to survive the hell week that follows, and the intense rehab schedule for as long as I need too.  I got this. 
 
So picture me this:
I'm sitting in bed, with my best friend Angie (who flew down here for my surgery), typing this blog, watching American Idol (go LaPortia), while she hammers wine and I hammer water, talking about how we could have never guessed that we would find ourselves here. It's not everyday you go have brain surgery!! 
 
Before I sign off for awhile, I have a couple favors to ask of you:
Please like "Love for the Smiths" on Facebook.  I went to college with Natalie and Chris and their son, Jace, needs all the prayers we can give him. 
 
And selfishly, please send up a whole lotta prayers for me for tomorrow.  My surgery is at 10 am Iowa time.  Please pray for Dr. Spetzler and his entire team to be on top of their game, for my CM to be completely removed, and for the best possible prognosis for me for when I awake.
 
LET'S DO THIS.
 
 
 
P.S.  Patrick will be in charge of the blog while I am on the injured reserve.  We will try to update as much as we can .
 
 
 
 
 
 

         

16 comments:

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  2. Heaven is holding conversations about you. Angels have been assigned to you. God is working for you tonight and will be at your side tomorrow. Be at peace!

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  3. Jamie, we are lifting you and your family in our prayers, just wanted to let you know we are all thinking of you! You sure set the bar high for the rest of us...you are really something.....you rock girl! Take one day at a time...hugs from IOWA

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  4. You've got an army, girl! Today is your day...praying hourly for you through it. ❤️

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  5. Keeping you in my prayers. God be with you, your family and your surgical team. May today be a positive new beginning....❤️

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  6. Praying for a successful surgery and rapid recovery!

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  7. I just happened upon your blog today. I knew your surgery was coming up as Amanda & Brian had told us but today as my day started your blog was the first thing that popped up on my FB page and I'm not sure how, but I do know why...Today I offer you up to be healed by His healing hands. I pray that the doctors are touched by His Grace and that all of your needs are met. May God's mercy be with you during your healing and may the angels comfort your beautiful family as they wait. All of our prayers, as long as it takes, will be offered up for you. God's Blessings to you! Fondly, Dave & Maggie Plahn

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  8. As you say...Do better Be better. My new mantra

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  9. As you say...Do better Be better. My new mantra

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  10. You don't know me but I'm a NLXFer up in Mason City and I have been reading your blog. I have been thinking and praying for you and your family as you have been going through this for the second time. Today I woke up and you were the first thought that popped into my head when I opened my eyes. So, I stayed in bed, closed my eyes back up and sent up some prayers for you, your family and your surgery. I will be doing the blacklight gauntlet tonight in MC in your honor and cannot wait to read your amazing recovery story and the next chapter of new health for you!!!!

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  11. Many thoughts and prayers are with you from us in Minnesota. You can do this Jamie!

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  12. You do not know me, but you know my daughter, Karri. I want you to know that here in Maquoketa many people have been praying for a healthy recovery for you so that you and your family can make more happy memories together. As soon as I heard and then read your story, I put you on the prayer list. You are an amazing and incredible person. I wish you all the very best.

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  13. You don't know me either, but I had Dr. Spetzler operate on me April 1, 2011. He is incredible. A friend of mine sent me your blog. It's like mine, although I haven't updated it recently. Here's where it's located eyeneedhope.com

    My prayers are coming your way. I hope that you're doing well.

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  14. Any update on how the surgery went?

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